Reynaldo Flores
Age: 16 | Diagnosis: Choroid Complex Carcinoma (Brain Tumor) | Date of Diagnosis: 3/24/14
Where to start…It started with my son Rey as we call him, with headaches and nausea, throwing up every morning took him to hospitals to his Primary care Doctors and nothing the one thing that worried me he had vision problems started with double vision and then black outs his eye doctor spend a whole hour and recommended an MRI January 21,2013 expected everything to be ok but the worst news ever he had a Brain tumor stage 3 admitted right away and January 24 2013 surgery took place and my lil boy fought for his life and made it !
Chemotherapy was given for three months followed by MRIs every 3months and a year hadn’t passed since his last Chemotherapy when on April 11, 2014, we got another bad news he has not one but two tumors that came back, so he is in active treatments, stem cells removed to give back after his last chemotherapy is giving!!!! He is a fighter, and won’t give up yes he is scared every day that goes by, but we have faith in God he will make through it! He is currently home school, and he is doing great he is in 7th grade in Lebanon Middle School and misses all his friends and the things he enjoyed before, he also has a little chihuahua name Mico. All we can do is have FAITH and make the best of the situation!!
Update 1/31/2018
Rey had another tumor September 5, 2017, we decided to go to Washington to children’s hospital to do trial medication, but it didn’t work, so they decide to remove the tumor at Hershey. It went great but less than a month later two more tumors grew, they decided to remove the cancer on Dec 19, 2017, Dec 20th MRI was conducted, and they found a small tumor that wasn’t initially visible. Due to the location, he was not a candidate for surgery. January 9, 2018, he went in for a gamma knife procedure and Sunday morning Jan 28, 2018, he suffered two seizures. Monday morning Jan 29th, 2018, they found two new tumors. We are waiting to hear what treatment he can get to avoid the tumors to get any bigger.
Rey can’t catch a break he has missed the whole school year. He can’t do much but t sit and play ps4 or watch movies or sleep due to him being nauseous or restless nights!
Please keep Rey in your prayers as he continues to fight this cancer!
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Laynee Costello
The life-threatening battle was over for now. The chemo caused extensive tooth decay and physical delays, but hey we were out of the woods. Laynee worked tirelessly with PT and OT at both St. Christopher’s and the local school district to “just be a regular kid again.” We enjoyed nearly two years of clean scans and that oh so joyous phrase “no evidence of disease,” until two weeks ago. Laynee went in for her routine scans when “no evidence of disease” was off the table. How could this happen when rhabdomyosarcoma? This was not the plan. What else could we do besides wait on the biopsy of both the original tumor site and her bladder (where the new tumor was found). After days of an agonizing wait we got the news we were hoping not to hear, both sites are positive for rhabdomyosarcoma. Laynee will not only be undergoing intense multi-drug chemotherapy but radiation as well. This Friday Laynee has her PET scan and next week bilateral bone marrow biopsies to see if her cancer has metastasized. After that, her port will be placed on Wednesday during the bone marrow aspiration, and chemotherapy will be started immediately after.
Best case scenario Laynee will have local spread, and hopefully, the chemo and radiation will be enough (we were warned that her ovaries would have to be frozen to preserve fertility and her bladder will most likely be destroyed, leading the nephrectomy tubes). This next line is the most challenging line to write; if her cancer has metastasized, there is nothing more we can do but attempt to prolong Laynee’s life since it will have become terminal.
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Because dear Lucas you were a complete joy and abundant light to all that knew you. Your dad and my heart grew greater than we knew possible the moment we met you.
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