Today it has been exactly four months since Laney got her pink, glittery, angel wings. It honestly doesn’t seem real to me some days. Then there are some days where the pure reality of it brings me to my knees. When I look at her pictures hanging on the walls I know that there will never be new ones to replace them. Our pictures will grow older but hers will always remain the same. I will always have an eight year old daughter no matter how old or gray I get. It is also a reality when I scroll through pictures on my phone. It takes me longer and longer to scroll to a picture of her beautiful face. That is a constant reminder that time is moving forward without her in it.
People ask how we are doing all the time and I really don’t have an answer for them except to say we are “existing”. It is crazy how much one little person in a family of five kept us all balanced. The off balance, which is our lives now, is so unsettling. I always say she was our ying in a family full of yangs. There is one thing that Laney did leave behind and that is her inspiration. I receive emails everyday about how Laney has changed people’s lives for the better. I’ve read stories about how her hope and strength has given others hope and strength.
As well as inspiring people from around the world, she has also inspired my family and I. She has inspired me not to be stagnant in this life because you never know when it will be taken from you. She inspired us to make a difference and to change the hearts and lives of others by example and not in words alone.
When Laney was first diagnosed with AML we got to experience life with cancer and see others around us doing the same. The hospital was home to us. Laney got to see all the joy that the nurses and doctors brought to the children they cared for. But she also got to see less fortunate things. She got to see children who never had a mommy or daddy at their bedside. She saw children without one card taped to their walls. Laney and I prayed together for a little boy who had died just a couple rooms down from us while his mom cried uncontrollably in her family’s arms. That’s when Laney said she wanted to do something special for other children with cancer. She wanted to tell them not to be afraid. Her dream was to become a pediatric oncology nurse so that she could tell the kids that their hair will grow back and show them how hers did.
Since Laney was more than a decade away from being able to start her nursing career we talked with her about doing something for the kids and families now. We talked about decorating the doors of the other children because we all know how Laney loved to bling things out. We talked about ways to raise money for families who were struggling. Her face would always light up at the thought of helping others.
When Laney has passed away her dreams did not go with her. Her inspiration blazed stronger than ever in my heart. I was going to make her dreams a reality. I was going to make her legacy live on. So with the help of many people we have started a foundation in her honor. We named it Laney’s Legacy of Hope. We did so because Laney does have a legacy. She has touched hearts from around the entire world. She was also given the title of Ambassador of Hope because she brought communities together. Ten thousand people gathered outside our home to sing her Christmas carols. Delaney taught people that sometimes it is the most inexpensive presents that matter the most on Christmas. She made people look past all the distractions that life gives you and caused you to remember the important things in life, family, faith, and love.
With that said I would like to officially announce Laney’s foundation….. Laney’s Legacy of Hope! We will provide funding to families of children with high risk cancers and also give money to researchers to continue their mission of finding a cure.
With your help we can make Laney’s dreams come true and make a difference in sick children’s lives. Take action against childhood cancer!
Alexis Runyen
Piper Irias
Jeremiah Reedy
Vincent Nowroozi
Xavier Ortiz
Caden Davis
Lucas Brown
Because dear Lucas you were a complete joy and abundant light to all that knew you. Your dad and my heart grew greater than we knew possible the moment we met you.
Megan Martin
Shailey Kimmel
Celia Cosentino
Julia Adams
Chloe Koenig
Anthony Myers
Benjamin Reinhold
Blaze Troutman
Kierra Broadwater
Liam Simpson
Juwan Adams
Scarlet Ornelas
Michael Gallagher
King Singh
Riley Rejniak
Skylar Maganda
Yomary Velez
Gemma Cecil
Troy Viveros
Arelio Mercado
Arelis Rodriguez
Vincent Lucchese
Camden Martinez
Taylor Rose Schmidt
Hozhoonii Suer
Lylah-Jean
Ayden Brown
Cristinia Astacio
Antonio Gomez-Colon
Laynee Costello
The life-threatening battle was over for now. The chemo caused extensive tooth decay and physical delays, but hey we were out of the woods. Laynee worked tirelessly with PT and OT at both St. Christopher’s and the local school district to “just be a regular kid again.” We enjoyed nearly two years of clean scans and that oh so joyous phrase “no evidence of disease,” until two weeks ago. Laynee went in for her routine scans when “no evidence of disease” was off the table. How could this happen when rhabdomyosarcoma? This was not the plan. What else could we do besides wait on the biopsy of both the original tumor site and her bladder (where the new tumor was found). After days of an agonizing wait we got the news we were hoping not to hear, both sites are positive for rhabdomyosarcoma. Laynee will not only be undergoing intense multi-drug chemotherapy but radiation as well. This Friday Laynee has her PET scan and next week bilateral bone marrow biopsies to see if her cancer has metastasized. After that, her port will be placed on Wednesday during the bone marrow aspiration, and chemotherapy will be started immediately after.
Best case scenario Laynee will have local spread, and hopefully, the chemo and radiation will be enough (we were warned that her ovaries would have to be frozen to preserve fertility and her bladder will most likely be destroyed, leading the nephrectomy tubes). This next line is the most challenging line to write; if her cancer has metastasized, there is nothing more we can do but attempt to prolong Laynee’s life since it will have become terminal.
Kyanna Harris
Virginia Rose Vandermark
Isabella "Bella" Conroy
Ariel Rodriguez
Brayden Zackon
Mason Kosmoski
Angelina Miele
Reynaldo Flores
Rey had another tumor September 5, 2017, we decided to go to Washington to children’s hospital to do trial medication, but it didn’t work, so they decide to remove the tumor at Hershey. It went great but less than a month later two more tumors grew, they decided to remove the cancer on Dec 19, 2017, Dec 20th MRI was conducted, and they found a small tumor that wasn’t initially visible. Due to the location, he was not a candidate for surgery. January 9, 2018, he went in for a gamma knife procedure and Sunday morning Jan 28, 2018, he suffered two seizures. Monday morning Jan 29th, 2018, they found two new tumors. We are waiting to hear what treatment he can get to avoid the tumors to get any bigger.
Rey can’t catch a break he has missed the whole school year. He can’t do much but t sit and play ps4 or watch movies or sleep due to him being nauseous or restless nights!
Please keep Rey in your prayers as he continues to fight this cancer!